Macmillan Cancer Support

Have your say about cancer services

Tell your story

mel 1



Ocular Melonoma

went for my eye test April 2013 did not know anything was wrong with my eye, i was sent to hospital in Liverpool there was told I had eye cancer Ocular Melonoma had not heard of this. I have had Proton Beam Radiotherapy and MRI every 6 months. The staff at Liverpool are great but I think we need more awareness of this Rare Cancer.

1 Responses

The mayan
 Patient on 14th July 2014

Diagnosed september 2013 referred to glasgow. Plaque therapy treatment december 2013.....informed I would not get MRI scans even though this cancer spreads through the blood to the liver etc, have done nothing but fight for scans still with no joy only ultrasound of the liver which we all know is useless in detecting lesions.....why are sufferers of this rare orphaned cancer treated so differently from sufferers of other cancers? Is it because doctors do not know enough or because they know eventually they know we have no chance of survival. Post treatment support has been appauling

Post Your Response

  • Tell us your story
  • Label your post

Step 1. Tell your story

Feel free to complete the form below in your own words - write as much or as little as you like! Your comments will be appear anonymously on PEBL and a summary of everyone's posts will be sent every month to the people who run your local NHS.